Research is at the heart of solutions for all patients. However, it is not always conducted with the patient in mind. Patient organisations are increasingly invited to submit evidence to healthcare decision-makers, but collecting good quality evidence is difficult.
Share4Rare is changing that by promoting research on patients initiated by patients. They are at the start but in the future hope to offer additional support services — anything from the planning, submitting, conducting and publishing your research findings.
To share the latest updates from the Share4Rare project with the new dedicated and enhanced profile for patient organisations, a virtual meeting with members of the Share4Rare consortium,will take place on Tuesday, June 16th, 16:00 CEST. During this hour-long webinar, participants find out how Share4Rare can help you to make a difference for your disease research.
It provides practical tools for patient organisations on:
Join us for a virtual coffee on a meeting for Patient Organisations in Rare Disease Research on Tuesday, June 16, 16:00 CEST to find out how the Share4Rare platform can help you to make a difference for your disease.
Join in on June 16, 16:00 CEST.