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EJP RD is pleased to announce that the next edition of the 7th RE(ACT) Congress and 5th IRDiRC Conference will be held in person in…

The sessions will concern the shared themes between the nerve and the muscle, the first one focused on the clinic of facial injuries (in partnership…

Description: Tuberous sclerosis complex (TSC) is a rare genetic disorder that can affect any organ system. Many manifestations can be associated with severe morbidity and…

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people…

The 12th edition of the Awards will take place on Tuesday, 21st February 2023 at the DoubleTree by Hilton Brussels City, Brussels, Belgium. The event…

Porto, 2-3 Feb 2023

Recording coming soon 3-4 pm CET This webinar is part of the educational webinar series on rare neurological, neuromuscular and movement disorders, neurorehabilitation and advanced…

Mitochondrial diseases are very complex disorders, still little known by the scientific community, with multi-system manifestations and different ages of onset, ranging from infancy to…

The World Duchenne Awareness Day, will take place on September 7th, is the official campaign to raise awareness for people living with Duchenne & Becker…

The RYR-1 Foundation’s first-ever “RYR-1-Related Diseases International Research Workshop: From Mechanisms to Treatments” will occur from July 21-July 22, 2022, at the Hyatt Regency Pittsburgh…

The aim of this webinar is to provide you with tips and ideas for managing fatigue – one of the most common symptoms experienced by…

17th INTERNATIONAL CONGRESS ON NEUROMUSCULAR DISEASES 5th-9th July 2022, Brussels, Belgium ICNMD is organising their 17th Congress focussing on  neuromuscular diseases to be held from…