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Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people…

The 12th edition of the Awards will take place on Tuesday, 21st February 2023 at the DoubleTree by Hilton Brussels City, Brussels, Belgium. The event…

Porto, 2-3 Feb 2023

Recording coming soon 3-4 pm CET This webinar is part of the educational webinar series on rare neurological, neuromuscular and movement disorders, neurorehabilitation and advanced…

Mitochondrial diseases are very complex disorders, still little known by the scientific community, with multi-system manifestations and different ages of onset, ranging from infancy to…

The World Duchenne Awareness Day, will take place on September 7th, is the official campaign to raise awareness for people living with Duchenne & Becker…

The RYR-1 Foundation’s first-ever “RYR-1-Related Diseases International Research Workshop: From Mechanisms to Treatments” will occur from July 21-July 22, 2022, at the Hyatt Regency Pittsburgh…

The aim of this webinar is to provide you with tips and ideas for managing fatigue – one of the most common symptoms experienced by…

17th INTERNATIONAL CONGRESS ON NEUROMUSCULAR DISEASES 5th-9th July 2022, Brussels, Belgium ICNMD is organising their 17th Congress focussing on  neuromuscular diseases to be held from…

Next webinar organised by ERN-RND will be on : ‘Mitochondrial leukodystrophies’ by Anna Ardissone 24 May 2022, 3-4pm CEST The speaker is Child Neurologist at…

OBJECTIVES This combined webinar & workshop will provide an update on Solve-RD Sandbox services/functions, and also consider future plans, needs and possibilities. Intended participants include…

Muscular Dystrophy UK will host a Muscles Matter Seminar on Congenital Muscular Dystrophy on Tuesday the 29th of March from 10am – 12pm CET. The…