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SMA Europe takes great pride in inviting scientists and young researchers as well as clinicians and other healthcare professionals from all over the world to…

As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by…

Exciting Announcement! Join EURORDIS-Rare Diseases Europe for a captivating webinar enhancing Patient Partnership, featuring a unique patient’s perspective from the Chair of our Educational Board,…

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people…

Together with Muscular Dystrophy Canada (MDC) we are pleased to invite you to a webinar on therapies for Duchenne muscular dystrophy. This webinar is primarily…

Join EPICARE, ERN Ithaca, ERN RND and us for a deep dive into the world of Neurological Disorders and European Reference Networks at our upcoming…

This case-based rounds webinar is for Canadian clinicians, academics, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical…

The ICNMD International Congress on Neuromuscular Diseases is organized on behalf of the Specialty Group on Neuromuscular Diseases (NMD) of the World Federation of Neurology…

DUCHENNE PATIENT ACADEMY PROGRAM This year, the 7th edition of Duchenne Patient Academy will take place. The Academy provides online  training for Duchenne and Becker…

INSPIRE NMD provides a forum to share our skillsets with the aim of improving the quality of psychosocial care offered to people with slowly progressing…

Dear EURO-NMD board representatives, affiliated partners and executive committee members, On behalf of Teresinha Evangelista and the Paris coordination team, it’s a great pleasure to…