Duchenne Patient Academy

30 November – 6 December 2020

Closing Date for Applications – 13th November 2020

Duchenne Patient Academy is open to DMD/BMD patient advocates, with selected days open to all NMD patient advocates who might be interested. It will be of particular interest to the following groups: individuals affected by DMD/BMD, patient organisations, researchers and clinicians. Patient advocates do not have to be connected to patient organisations. Attendees have the opportunity to participate in networking opportunities and various parallel sessions according to their preferences.

  • Duchenne Patient Academy is one of the leading worldwide patient advocacy events for the Duchenne and Becker Muscular Dystrophy (DMD/BMD) community
  • The 2019 edition welcomed over 100 participants from 39 countries across the world
  • Attendees receive training from global experts in the field of research, care, policy-making, regulations and funding
  • The training will be open for Duchenne and Becker patient advocates, and is inviting other neuromuscular conditions to join selected days as well
  • Over 85% of our alumni recommends DPA to receive training on patient advocacy and participate in networking opportunities

Patient organisations from other neuromuscular conditions such as Spinal Muscular Atrophy (SMA), Limb-Girdle Muscular Dystrophy (LGMD), Facioscapulohumeral Muscular Dystrophy (FSHD) or NMD umbrella organisations are invited to join selected days of the programme. Please indicate the condition you are affected with or represent in the application procedure.

Find out more about the programme, speakers and how to apply

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern