We are delighted to announce the second edition of this Summer School, co-organized by the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) and the French network of expertise on NMDs (FILNEMUS).
Topics
The program addresses key aspects of care extending beyond the neuromuscular sphere, including:
- Extramuscular involvement: cardiac, endocrinological, gastrointestinal, skin and respiratory systems
- Dysautonomia, central nervous system disorders and epilepsies
- Rehabilitation
- Palliative care
- Psychological impact of NMDs
- Management of relationships and sexuality
- Management of pregnancy
Target audience
This program is designed for individuals actively involved in the field of NMDs, including:
- MDs or medical students
- Physical therapists
- Other healthcare professionals involved in NMD care
- Researchers
- Patients and patient representatives
⚠️ Important note: This course is NOT intended to provide basic teaching on neuromuscular diseases or their treatments.
Scientific committee
- Teresinha Evangelista, AP-HP – Hôpital Pitié-Salpêtrière, Paris, France
- Shahram Attarian, AP-HM- Hôpital de la Timone, Marseille,
- Marianne Nordstrøm, University of Oslo, Norway
- Marianne de Visser, Amsterdam University Medical Center, The Netherlands
- Davide Pareyson, Fondazione IRCCS Istituto Neurologico C.Besta, Milan, Italy
- Isabelle Desguerre, AP-HP – Hôpital Necker, Paris, France
- Jean-Philippe Plançon, AFNP – La Baule-Escoublac, France
- Hélène Prigent, AP-HP – Hôpital Raymond-Poincaré, Garches, France
- Karim Wahbi, AP-HP- Hôpital Cochin, Paris, France
Educational formats
The Summer School on Multidisciplinary Management of NMDs combines various educational formats including:
- Scientific lectures addressing key aspects of NMD patient management by highly qualified clinicians representing the various disciplines covered in the programme,
- Q&A and Discussion: the programme includes numerous opportunities for interaction, allowing attendees to engage with the speakers and share their experience.
- A serious game: Participants will engage in role-playing scenarios focused on delivering diagnoses, receiving constructive feedback from both patients and clinicians.
- Group work and Hands-on session: Through collaboration on clinical case presentations, participants will apply and integrate the knowledge gained throughout the course.
- An interactive expert panel discussion on multidisciplinary care access in Europe
Practical information & programme
📆 24 – 27 September 2025
📍Location: Marseille, France
Click here to see the preliminary programme!
- For all participants, coffee breaks, lunches, and the conference dinner are provided and offered by the organizers.
- Accommodation for three nights (Wednesday, September 24 – Saturday, September 27) will be arranged and covered for all selected participants, except those from the industry, who will be responsible for their own accommodation.
- All participants must arrange their own travel.
Registration fees & pre-registration form
- Standard rate:
- Early-bird rate (until April 30): 250 EUR
- Regular rate (after April 30): 300 EUR
- Industry representative: 1000 EUR
Pre-registration for the 2025 edition is now OPEN! Complete the form at the following link to submit your application: Click here
Please be aware of the following registration process:
- Pre-registration closes around late May/early June, with limited spots available.
- Two selection phases will take place: the first at the end of April, the second at the end of May.
- The organizing committee will review applications after each phase and select candidates.
- Selected candidates will be contacted and invited to pay the registration fee.
- Registration is only confirmed upon payment of the fee.
Objectives of this programme
The program arose from the need for a comprehensive approach addressing all stages of the clinical pathway for NMD patients, extending beyond the neuromuscular sphere. Its inclusive scope emphasizes the importance of multidisciplinary care for diverse neuromuscular conditions.
Participants will benefit from expert insights shared by a highly qualified Faculty, including clinicians representing various disciplines, psychologists, a speech and language expert, a dietitian, and patient representatives.
Particular attention will be given to the importance of using appropriate communication in sensitive situations, such as delivering a diagnosis, discussing palliative care, and to applying these skills in daily practice. A dedicated presentation and a hands-on session featuring patient representatives will provide direct insights into the patient journey.
Attendees will gain a comprehensive understanding of the multidisciplinary approach to NMD care, which will help them develop new perspectives and practical skills to enhance care in their respective teams and institutions.