François Lamy

François Lamy is the father of a 11 year-old boy with Duchenne Muscular Dystrophy. He has been elected as a member of the Board of Directors of the AFM-Téléthon since 2012, and currently serves as its Vice-President in charge of research. François Lamy also serves on the Board of Directors of the Center for the Study of Stem Cells (I-Stem CECS) and YposKesi (AFM-Telethon co-funded Biotech acting in Gene and Cell Therapy).

François's Network Involvement

François is involved in these different areas of the network...
Patient Advisory Board - Member Member of Network Executive Committee

Presentations

The Voice of Patients within EURO-NMD
Presented on – 29 November 2017
Meeting – EURO-NMD 1st Annual Meeting
Location – Freiburg, Germany

Organisation

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern