Arabela Acalinei

Arabela Acălinei serves as the President of Neuro Move CMT Association in Romania and President of EAMDA – the European Alliance of Neuromuscular Disorders Associations. Since 2020, she is a Board Member of the European CMT Federation, serving as their Eastern Europe Ambassador. Furthermore, since 2024, she is a Board Member of EFNA – the European Federation of Neurological Associations. Arabela is a patient with Charcot-Marie-Tooth type 1A disease and has 12 more people in her family with the same condition, her 2 sons included. Dealing with such a disease, ignited her passion for patient advocacy, particularly for individuals living with CMT and similar neuromuscular disorders. In her professional life, Arabela is a Romanian-English teacher, translator, and professional trainer. Her educational background also includes trainings in Project Management and Career Counseling for people with disabilities. Furthermore, Arabela Acălinei is a EURORDIS Winter and Summer School alumni, EUPATI fellow and a member of EURORDIS HTA Task Force. In July 2023, she graduated the 5th Neuromuscular Translational School, organized in Leiden, Netherlands by EURO-NMD and TREAT-NMD. Beyond her advocacy and professional pursuits, she is passionate about reading, learning, traveling, and connecting to people.

Contact me at pab@ern-euro-nmd.eu