Baltic school of Neuro-Myology”Satellite Meeting Riga, 2023“Update in Neuromuscular disorders” 2023CONGENITAL MYOPATHIES AND MUSCULAR DYSTROPHIES14.06.2023…
The workshop EJPRD “ERN biological samples in Rare Diseases research: Added value and usefulness.” will…
The Clinical Patient Management System (CPMS) aims at supporting ERNs in improving the diagnosis and…
Our network is currently in the process of identifying and subsquently targeting a number of…
We’re happy to announce our upcoming webinar series on Gene Therapy co-organized by EURO-NMD, ERN-RND,…
Accredited Duchenne Centers provide comprehensive care according to the international care considerations and consensus guidelines.…
The U.S. Food and Drug Administration (FDA) announced a new funding opportunity for the FDA Rare Neurodegenerative Disease…
AFM-Telethon is pleased to announce the launch of its first international call for proposals for…
ERN EURO-NMD NEUROMUSCULAR IMAGING CROSS-CUTTING SPECIALIST WORKING GROUP SESSION for EU cases, registered in the…
OMNIS (Open Muscle Nerve Imaging Series) for non EU cases, with access to online discussion…
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Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in…
