CPMS
The Clinical Patient Management System (CPMS) aims at supporting ERNs in improving the diagnosis and…
April 6, 2023
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Guidelines
Our network is currently in the process of identifying and subsquently targeting a number of…
Gene Therapy webinar series: Episode 12 – July 23rd – 15:00 – 16:00 CEST
We’re happy to announce our upcoming webinar series on Gene Therapy co-organized by EURO-NMD, ERN-RND,…
Accredited Duchenne Center Program now accepting applications
Accredited Duchenne Centers provide comprehensive care according to the international care considerations and consensus guidelines.…
The U.S. Food and Drug Administration (FDA) – Rare Neurodegenerative Disease Grant Program
The U.S. Food and Drug Administration (FDA) announced a new funding opportunity for the FDA Rare Neurodegenerative Disease…
AFM-Telethon International Thematic Call for Projects 2023 focused on: Innovative Mitochondrial Medicine
AFM-Telethon is pleased to announce the launch of its first international call for proposals for…
ERN EURO-NMD Neuromuscular Imaging Cross-Cutting Specialist Working Group Session
ERN EURO-NMD NEUROMUSCULAR IMAGING CROSS-CUTTING SPECIALIST WORKING GROUP SESSION for EU cases, registered in the…
OMNIS (Open Muscle Nerve Imaging Series)
OMNIS (Open Muscle Nerve Imaging Series) for non EU cases, with access to online discussion…
Two-questions-only survey about new CPMS preferred name
Your opinion is important for us, thanks for helping us with this survey. [quform id=”38″…
Rare Disease Day 2023
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in…
Thank you !
It’s been a week already that we said good-bye to beautiful Porto, where we all…
Call for members for 4 new IRDiRC Task Forces
IRDiRC launches the Call for Members for the four new Task Forces of the 2023 Roadmap.…