Common data elements for Arthrogryposis Multiplex Congenita: An international framework
Aim: To facilitate multisite studies and international clinical research, this study aimed to identify consensus-based, standardized…
November 13, 2024
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ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of…
EURO-NMD Webinar Series on Neuromuscular Pathology!
Get ready for the EURO-NMD Neuromuscular Neuropathology Webinar Series—an exciting nine-episode journey through the world…
Call for Nominations: ERDERA Multistakeholder Advisory Group
The European Rare Diseases Research Alliance (ERDERA) seeks experts to join its Multistakeholder Advisory Board…
World Mitochondrial Awareness Month 2024 Webinar Series
World Mitochondrial Awareness Month takes place in September, and it’s a global initiative to raise…
Videos for CPMS 2.0
Dear ERN community, In an effort to support the transition from the current CPMS to…
An overview on the use of nerve biopsies in the diagnosis of peripheral neuropathies
Joachim Weis, Institute of Neuropathology, RWTH Aachen University Hospital, Aachen, Germany Jena-Michel Vallat, Department of…
A new website is coming!
We are delighted to introduce our newly redesigned website, tailored specifically for the neuromuscular disease…
EJP RD: New online course Innovative Therapies and Personalized Medicine for Rare Diseases
Exciting News! Our course “Innovative Therapies and Personalized Medicine for Rare Diseases” is officially live!…
Videos for CPMS 2.0
Dear ERN community, In an effort to support the transition from the current CPMS to…
EURO-NMD Academy (Moodle): Performing important maintenance!
We would like to inform you that we will be performing important maintenance on your…
6th Neuromuscular Translational Summer School
The 6th Neuromuscular translational summer school, Leiden, Netherlands 09/07/2024 – 12/07/2024, has been accredited by…