Although the main outcome measure of the trial was not met (“Changes in DUX4-driven gene…
The July 2021 newsletter of FSHD European Trial Network is now available. Click the link…
Themes of the EJPRD June 2021 Newsletter: Resource Finder Demonstration Resource Webinar: Human Pluripotent Stem…
The International Myositis Society (iMyoS) has been established in 2019. The main goal of the…
ENMC has started a new initiative of “Themed Workshops”. Due to the fact that we…
AGENDA European Reference Network for Rare Neuromuscular Diseases Online Work Group and Board Meetings Monday…
Dear members of the Board, Affiliated Partners, Executive Committee and Patient Advisory Board, You are…
EURO-NMD is pleased to announce the establishment of the “FSHD European Trial Network”. Nicol Voermans…
The “Treatabolome”, a new concept emerging from a European Project addressing unsolved rare diseases (Solve-RD,…
The Euro-NMD webinar series of July will be devoted to some of the lectures given…
AcadeMYO is the digital version of the renowned Summer School of Myology that has been…
The European Reference Network (ERN) on Rare Neuromuscular Diseases (EURO-NMD) is aiming at remodelling its…