Call for new patient representatives to join Euro-NMD
In April 2022, 33 patient representatives from 23 patient organisations and 11 countries are involved…
April 29, 2022
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Patient reported outcome measures (PROMs) survey
We are conducting a survey in order to get a better understanding on the knowledge…
ERICA : Collaborative inter-ERN research wall
ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have…
CPMS: simplifying the access request process
From DG Health “DG Health is looking for solutions that guarantee a high level of…
EJPRD : The ERN Research Training Workshops call
Aim of the call The goal of the workshops is to train researchers and clinicians…
Survey for patients: Unmet needs of rare and complex diseases related to pregnancy and family planning for patients and caregivers
ERN Euro-NMD is participating in a transversal cross-ERN Study Group on Pregnancy and Family Planning…
#ERNcare4Ua – Solidarity with Ukraine
Веб-сторінка українською мовою для медичних працівників The European Reference Networks have set up a…
Regulatory harmonisation of clinical trials in the EU and launching of the Clinical Trials Information System
From EMA’s news webpage: On 31 January 2022, the Clinical Trials Regulation (CTR) will come into application…
Digital Tools for Rare Disease (DT4RD)
The DT4RD project brings together a multinational consortium consisting of Aparito, Paris Institut de Myologie…
Welcome to our new Patient Representatives !
We wish a warm welcome to the four new patient representatives of Euro-NMD: Yasemin Erbas…
Expertise coverage by HCP
HCP Country HCP City HCP Name Rare Muscle Neuromuscular Junction Peripheral Neuropathies Motor Neuron Diseases…
Call for Members: IRDiRC Task Force on Drug Repurposing Guidebook
The Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook to…