Characterization of Neuromuscular and Cardiac Disorders linked to the BAG3 GENE
Rationale for this research study: BAG3 is a muscle cytoprotective protein and mutations in the…
May 3, 2023
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Course “Development of Clinical Practice Guidelines”
The course “Development of Clinical Practice Guidelines” is already available in the EU Academy of…
EURO-NMD ENDORSED: “Update in Neuromuscular disorders 2023: CONGENITAL MYOPATHIES AND MUSCULAR DYSTROPHIES, Riga, Latvia
Baltic school of Neuro-Myology”Satellite Meeting Riga, 2023“Update in Neuromuscular disorders” 2023CONGENITAL MYOPATHIES AND MUSCULAR DYSTROPHIES14.06.2023…
Registration deadline for workshop “ERN biological samples in Rare Diseases research: Added value and usefulness” is 20/04/2023
The workshop EJPRD “ERN biological samples in Rare Diseases research: Added value and usefulness.” will…
CPMS
The Clinical Patient Management System (CPMS) aims at supporting ERNs in improving the diagnosis and…
Guidelines
Our network is currently in the process of identifying and subsquently targeting a number of…
Gene Therapy webinar series: Episode 12 – July 23rd – 15:00 – 16:00 CEST
We’re happy to announce our upcoming webinar series on Gene Therapy co-organized by EURO-NMD, ERN-RND,…
Accredited Duchenne Center Program now accepting applications
Accredited Duchenne Centers provide comprehensive care according to the international care considerations and consensus guidelines.…
The U.S. Food and Drug Administration (FDA) – Rare Neurodegenerative Disease Grant Program
The U.S. Food and Drug Administration (FDA) announced a new funding opportunity for the FDA Rare Neurodegenerative Disease…
AFM-Telethon International Thematic Call for Projects 2023 focused on: Innovative Mitochondrial Medicine
AFM-Telethon is pleased to announce the launch of its first international call for proposals for…
ERN EURO-NMD Neuromuscular Imaging Cross-Cutting Specialist Working Group Session
ERN EURO-NMD NEUROMUSCULAR IMAGING CROSS-CUTTING SPECIALIST WORKING GROUP SESSION for EU cases, registered in the…
OMNIS (Open Muscle Nerve Imaging Series)
OMNIS (Open Muscle Nerve Imaging Series) for non EU cases, with access to online discussion…