FSHD European Trial Network
EURO-NMD is pleased to announce the establishment of the “FSHD European Trial Network”. Nicol Voermans as chair and Pascal Laforet as vice chair; George Padberg and Baziel van Engelen as advisors coor …
Current Newsletter
ERN background
Why rare diseases?
20 Feb 2019Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
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What are ERNs?
20 Feb 2019 -
Adding value for patients and professionals
20 Feb 2019 -
How ERNs are approved?
20 Feb 2019
Recent activities
Training needs in rare neuromuscular diseases in Europe: an EURO-NMD Survey.
18 Aug 2021EURO-NMD is running a survey to map the training needs in rare neuromuscular diseases in Europe for planning new educational activities that are bette …
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First CPMS Grand Round: access on demand to the recording on CPMS
11 Aug 2021 -
Feedback for 2021 webinars
26 Jul 2021
Upcoming events
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International Course and Conference on Neuromuscular Imaging 2021
20 September 2021 -
World Muscle Society 2021
21 September 2021 -
The Basics & Beyond Workshop in clinical epidemiological research for ERNs
30 September 2021 -
Clinical Research with databases: The Basics & Beyond Workshop in clinical epidemiological research for ERNs
30 September 2021 -
NGS results and CNV detection in Czech patients with neuromuscular disease
30 September 2021
- View complete list of events -
