ERN-EURO-NMD – European Reference Network

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RD-Connect webinars now available online

We are delighted to announce that the series of RD-Connect webinars are now available online. As part of a close working relationship between EURO-NMD and RD-Connect three informative webinars were or …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

General Information: EURO-NMD Annual Meeting 2018

9 Nov 2018

This post is dedicated to providing some general information regarding the EURO-NMD Annual Meeting 2018 including travel options, nearby facilities an …

RD-Connect webinars now available online
4 Oct 2018

ENMC publishes report from GNE myopathy workshop
1 Oct 2018

Upcoming events

View complete list of events

Our platforms

Clinical Patient Management System
13 Jul 2017
Collaborative platform
13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

General Information: EURO-NMD Annual Meeting 2018

RD-Connect webinars now available online

ENMC publishes report from GNE myopathy workshop

Upcoming events

17th Annual King’s Neuromuscular Disease Symposium

DIA EUROPE 2019

Rare Disease Day 2019

ABRF 2019 Annual Meeting

6th International Congress of Myology

Our platforms

Clinical Patient Management System

Collaborative platform