ERN-EURO-NMD – European Reference Network

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Official report from 4th European Reference Network Conference now available

Health professionals, researchers, patient organisations and policymakers gathered in Brussels on 21 & 22 November for the 4th European Reference Networks Conference. The well-attended and lively even …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

ERNs feature in new European Commission campaign

28 Jan 2019

European Reference Networks are beginning to have a real impact on the day to day lives of people across Europe who are living with rare diseases. The …

Official report from 4th European Reference Network Conference now available
15 Jan 2019

RD-Connect webinars now available online
4 Oct 2018

Upcoming events

View complete list of events

Our platforms

Clinical Patient Management System (CPMS)
13 Jul 2017
Collaborative Platform
13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

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ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

ERNs feature in new European Commission campaign

Official report from 4th European Reference Network Conference now available

RD-Connect webinars now available online

Upcoming events

IV National Conference of Women Researchers in Rare Diseases

Rare Disease Day 2019

ABRF 2019 Annual Meeting

6th International Congress of Myology

UK Neuromuscular Translational Research Conference 2019

Our platforms

Clinical Patient Management System (CPMS)

Collaborative Platform