ERN-EURO-NMD – European Reference Network

About EURO-NMD – & ERNs
Patient – engagement
Educational – resources
Guidelines – & protocols
Research – & clinical trials
2018 Annual – Meeting
.
- Close
.
- Get in touch
  
  Please note: We can’t respond to individual patient cases from this form. Do not share any patient information through this email system.
  
  We will only use the information you send to us via this form to deal with your particular question. We will not add any details left here to our mailing lists and it will not be shown on our website.
  
  Once 'we' have been in touch with you we will delete your details from the system.
  
  'We' means the EURO-NMD Secretariat who are in overall charge of the website and its content.
  
  Are you happy with us storing the details below whilst we deal with your enquiry? (required)
  
  Yes, I'm happy for you to keep my data for this purpose
  
  Your name(required)
  
  Your email address(required)
  
  Subject(required)
  
  Your message(required)
  
  Are you human?(required)
  
  This field should be left blank
  
  Please wait...
- Close

Neuromuscular Summer School 2018 – Report

The first Neuromuscular Translational Summer School was devised and developed by Professor Annemieke Aartsma-Rus (LUMC, Netherlands and Newcastle University, UK), Silvere van der Maarel, (LUMC, Nether …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

RD-Connect announces educational webinars for ERN Stakeholders

7 Aug 2018

As part of a close working relationship between EURO-NMD and RD-Connect we are delighted to announce a series of highly relevant and informative webin …

Neuromuscular Summer School 2018 – Report
19 Jul 2018

Kate Bushby announces her retirement
24 May 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system
13 Jul 2017
Collaborative platform
13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

/* ----------------------------------------- */ /* Content Template: HeaderBanner - start */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: HeaderBanner - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Promo Banner Homepage - start */ /* ----------------------------------------- */ /** * This CSS is required for * Latest News Slider module operate * in Toolset -> Modules Library * Please don't remove */ #breaking-news-slider .bg-img-container > div { bottom: 0; position: absolute; } .breaking-news-navigation { position: absolute; right: 15px; z-index: 10; } #breaking-news-slider .bg-img-container { height: 400px; margin-bottom: 50px; } .bg-img-container { background-position: center center; background-size: cover; display: block; position: relative; } .bg-primary.glyphicon { color: #fff; padding: 17px; } .border-top, .border-bottom { margin-bottom: 0; } .nav .open > a, .nav .open > a:hover, .nav .open > a:focus, .panel-primary, .border-primary { border-color: #08c; } a.bg-primary { text-decoration: none; } .inline-block { padding: 10px; } .border-top, .border-bottom { margin-bottom: 0; } .nav .open > a, .nav .open > a:hover, .nav .open > a:focus, .panel-primary, .border-primary { border-color: #08c; } .post-info { color: #ccc; } /* ----------------------------------------- */ /* Content Template: Loop item in Promo Banner Homepage - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background Info - start */ /* ----------------------------------------- */ h4{ font-family: 'Andika', sans-serif; line-height:1.3em; } .BIExcerpt{ line-height:1.4em; font-size:0.9em; } h5{ font-family: 'Andika', sans-serif; } .tempBIImage{ padding-top:35px; padding-left:25px; } /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background Info - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background – Posts List - start */ /* ----------------------------------------- */ h4, h5{ font-family: 'Andika', sans-serif; } /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background – Posts List - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Sinlge Post - start */ /* ----------------------------------------- */ h5{ font-family: 'Andika', sans-serif; } h4{ font-family: 'Andika', sans-serif; line-height:1.3em; } .RAExcerpt{ line-height:1.4em; font-size:0.9em; } /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Sinlge Post - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Posts List - start */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Posts List - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Events Sidebar - start */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Events Sidebar - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Platform Highlights for Sidebar - start */ /* ----------------------------------------- */ .platformListing{ //min-height:60px; //padding-top:5px; //margin-bottom:20px; } .platformListing img{ //padding-right:5px; } /* ----------------------------------------- */ /* Content Template: Loop item in Platform Highlights for Sidebar - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: FooterContact - start */ /* ----------------------------------------- */ body, h3{ font-family: 'Andika', sans-serif; } /* ----------------------------------------- */ /* Content Template: FooterContact - end */ /* ----------------------------------------- */

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

RD-Connect announces educational webinars for ERN Stakeholders

Neuromuscular Summer School 2018 – Report

Kate Bushby announces her retirement

Upcoming events

Duchenne Care Conference

1st European Transition Symposium

2018 MDF Annual Conference

Global Mitochondrial Disease Awareness Week

2018 Muscle Study Group Annual Scientific Meeting

Our platforms

Clinical patient management system

Collaborative platform