ERN-EURO-NMD – European Reference Network

About EURO-NMD – & ERNs
Patient – engagement
Educational – resources
Guidelines – & protocols
Research – & clinical trials
Translational – summer school
- Overview
  - Sponsoring this event
- Programme
- Apply
- - Translational Summer School Flier 2018
- Close
.
- Close
.
- Get in touch
  
  Please note: We can’t respond to individual patient cases from this form. Do not share any patient information through this email system.
  
  We will only use the information you send to us via this form to deal with your particular question. We will not add any details left here to our mailing lists and it will not be shown on our website.
  
  Once 'we' have been in touch with you we will delete your details from the system.
  
  'We' means the EURO-NMD Secretariat who are in overall charge of the website and its content.
  
  Are you happy with us storing the details below whilst we deal with your enquiry? (required)
  
  Yes, I'm happy for you to keep my data for this purpose
  
  Your name(required)
  
  Your email address(required)
  
  Subject(required)
  
  Your message(required)
  
  Are you human?(required)
  
  This field should be left blank
  
  Please wait...
- Close

Kate Bushby announces her retirement

After 29 years at Newcastle University, Professor Katie Bushby MD FRCP has announced her retirement as Professor of Neuromuscular Genetics and as coordinator of our ERN from the end of May 2018. Whils …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Last chance to register for our Summer School!!

18 Jun 2018

We have been delighted with the interest around this year’s summer school and for those who have already registered. We do have a few places remaining …

Kate Bushby announces her retirement
24 May 2018
Share4Rare hosts co-creation workshop
22 May 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system

13 Jul 2017

Collaborative platform

13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

Translational Summer School Flier 2018

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

Last chance to register for our Summer School!!

Kate Bushby announces her retirement

Share4Rare hosts co-creation workshop

Upcoming events

Summer School of Myology

ENCALS meeting 2018

TRICALS workshop

UMDF Mitochondrial Medicine 2018

Parent Project Muscular Dystrophy Annual Conference

Our platforms

Clinical patient management system

Collaborative platform