ERN-EURO-NMD – European Reference Network

Position statement from the ERN Coordinators

Released on 28 February 2018 – RARE DISEASE DAY! As Coordinators of the 24 European Reference Networks (ERNs), we stand together and united with our 900 strong members (healthcare providers) and the p …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Press release following the rare diseases day and 1 year anniversary of ERNs

28 Mar 2018

The computer networks are up and running and rare disease patients are starting to enter their data. A year after their launch, the European Reference …

Position statement from the ERN Coordinators
27 Feb 2018
Rare Disease Day 2018!
26 Feb 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system

13 Jul 2017

Collaborative platform

13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

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Translational Summer School Flier 2018

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

Press release following the rare diseases day and 1 year anniversary of ERNs

Position statement from the ERN Coordinators

Rare Disease Day 2018!

Upcoming events

American Academy of Neurology Annual Meeting

CMS Patient Day

EPNS Training Course 2018

Mitochondrial Medicine

European Conference on Rare Diseases and Orphan Products

Our platforms

Clinical patient management system

Collaborative platform