Survey on patients organisations’ knowledge and position paper on screening for inherited neuromuscular diseases in Europe
A new Euro-NMD publication is now available preprint on The Orphanet Journal of Rare Diseases about European patients organisations’ knowledge and position paper on screening for inherited neuromuscu …
ERN background
Why rare diseases?
20 Feb 2019Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
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What are ERNs?
20 Feb 2019 -
Adding value for patients and professionals
20 Feb 2019 -
How ERNs are approved?
20 Feb 2019
Recent activities
Current list of 2021 Euro-NMD Webinars
18 Jan 2021EURO-NMD provide educational webinars on a monthly basis to increase the knowledge around different specialist areas related to the neuromuscular fiel …
Upcoming events
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SLEEPINESS, FATIGUE AND APATHY IN DM1 PATIENTS
21 January 2021 -
Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers & Therapies
26 January 2021 -
European MTM-CNM Family Conference
21 May 2021 -
14th EPNS Congress
1 June 2021 -
7th Congress of the European Academy of Neurology
19 June 2021
- View complete list of events -
