ERN-EURO-NMD – European Reference Network

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ENMC publishes report from GNE myopathy workshop

Participants of the 237th ENMC workshop which was held in June 2018, reviewed the current medical and scientific knowledge relevant to GNE myopathy to achieve a better understanding of GNE myopathy ep …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

RD-Connect webinars now available online

4 Oct 2018

We are delighted to announce that the series of RD-Connect webinars are now available online. As part of a close working relationship between EURO-NMD …

ENMC publishes report from GNE myopathy workshop
1 Oct 2018

RD-Connect announces educational webinars for ERN Stakeholders
7 Aug 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system
13 Jul 2017
Collaborative platform
13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

RD-Connect webinars now available online

ENMC publishes report from GNE myopathy workshop

RD-Connect announces educational webinars for ERN Stakeholders

Upcoming events

EPNS Research Meeting

GBS/CIDP 15th Symposium

World Orphan Drug Congress Europe 2018

Action Duchenne Annual Conference

SMA Expert Masterclass

Our platforms

Clinical patient management system

Collaborative platform