The World Duchenne Organization and Duchenne Data Foundation have published their latest Research Article on the Journal of Neuromuscular Diseases and titled : “How Patient Organizations Can Drive FAIR Data Efforts to facilitate Research and Health Care”
It summarizes the presentations and discussions that took place in the second meeting on FAIR Data Sharing for Duchenne (March 3, 2021) and report on the key lessons learned since the first meeting.
Click on the link to read more about it
