- Moderators: Prof. Marianne de Visser
Neurologist, Emeritus Professor of Neuromuscular Diseases, University of Amsterdam, The Netherlands
Chair of the EURO-NMD Muscle Working Group
Prof. Dr. Kristl Claeys
Neurologist specialized in neuromuscular disorders working at the Laboratory for Muscle Diseases and Neuropathies, UZ Leuven, Belgium
Co-chair of the EURO-NMD Muscle Working Group - Submission Form for Cases : https://forms.gle/kJVvdpdnmAZ6KrpaA
- CPMS Meeting Link: https://cpms2.ern-net.eu/api/v2/meetings/join?id=e2b242d7-f2aa-43b9-949b-35197e5e4a5e
What are CPMS Days?
CPMS Days are structured, theme-based case discussions hosted within the Clinical Patient Management System (CPMS). Unlike standard CPMS use, these sessions bring together clinicians, invited experts, and observers to discuss multiple cases in a focused, live session. They aim to promote learning, share cross-border expertise, and improve patient care.
Objectives
- Facilitate cross-disciplinary discussions around a specific clinical theme
- Promote effective use of CPMS across the network
- Empower clinicians to present and learn from real cases
- Foster expert engagement and community collaboration
Who can participate?
- Case Presenters: Any ERN-affiliated clinician may propose a case, provided it is uploaded to CPMS and patient consent has been obtained.
- Experts: Invited to moderate and comment on selected themes
- Observers: Any CPMS-registered clinician may attend for educational purposes
Practical info
- A single CPMS video session/ Zoom session will cover all case dsicussions
- All participants must be registered CPMS users
CPMS Reimbursement Scheme
To support participation, ERN EURO-NMD has launched a Pilot Reimbursement Scheme under the current grant (EU4Health programme).
Reimbursement overview
- €200 per case, paid to the submitting HCP
- Applies only to cases presented during CPMS Days (not regular CPMS use)
- Case must be uploaded, reviewed, and closed with a final report
Key conditions
- Open to ERN EURO-NMD full members and affiliated partners
- One reimbursement per case
- HCP must sign a Cooperation Agreement with the EURO-NMD Coordinating Center (AP-HP) and submit an invoice
Invoice deadlines
- June 30, 2026: for 2025 and early 2026 cases
- September 1, 2027: final deadline for all submissions
Only one consolidated invoice per HCP per deadline will be accepted.
📄 Download the CPMS Reimbursement Protocol (PDF)
📄 Download the Cooperation Agreement Template (Editable Word file)
Contact
For further information, please contact:
Fernanda Fortunato – frtfnn@unife.it