Ingrid de Groot

Ingrid de Groot (1970, The Netherlands) was diagnosed with dermatomyositis in 2006. She is chair of the Dutch Myositis Working Group for Spierziekten Nederland, the Dutch patient organisation for neuromuscular diseases. She is also involved in several national and international projects regarding either myositis or neuromuscular and rheumatic diseases in general, like reviewing scientific research for funding bodies, as patient research partner of study groups in myositis (OMERACT, IMACS), member of EULAR (European League against Rheumatism) Study group for Collaborative Research and speaker on patient advocacy (Treat NMD). Ingrid has assisted patients in other countries to set up a myositis working group. She has a particular interest in research and development of outcome measures. She also was recently invited to be the first patient on the Medical Advisory Board of the Myositis Association (world’s largest patient association for myositis) and in that position will focus on research and education regarding psychosocial support and exercise and rehabilitation.