Isabela Tudorache

Isabela Tudorache is the mother of a young Duchenne Muscular Dystrophy man, aged 25. The main objective of her activity was to increase the life expectancy for all DMD/MBD children in her country, through legislative and educational interventions, to overcome the fatalistic attitude towards diseases with limited life span, and changing the mentality and perception towards disability in her country, She is the founder of the Parent Project for Research and Assistance in Muscular Dystrophy in Romania, a Eupati fellow, Project Manager and counselor for people with disabilities. She has PhD in Philosophy and Sociology, and several trainings in psychotherapy and project management. She received membership of WDO, the TREAT-NMD Global Database Oversight Committee, and ANBRaRo.