16 Jan 2025
The role of biopsy in acquired myopathies, other than inflammatory myopathies
…TIMESLOT: Thursday 16 January 2025 16:00 CET …THEME: The role of biopsy in acquired…
“Survey on unmet needs in personalised medicine management and the potential of personalised health technologies for healthcare professionals”
We have received through the ERICA project a request from the EC do promote this…
Screen4Care Launches Recruitment for Newborn Screening
The Screen4Care project, an innovative European research initiative, has launched recruitment for its newborn screening…
ERN EURO-NMD Retrospective of 2024
A Year of Growth and Impact As 2024 approaches its end, we are proud to…
Exploring Dysimmune and Inflammatory Neuropathies
The ERN EURO-NMD Working Group on Peripheral Nerve Diseases is pleased to present a Webinar…
We are hiring!
ERN EURO-NMD European Reference Networks (ERNs) are networks established under Article 12 of Directive 2011/24/EU…
Medical Research Assistant position open at CRM (G. Bonne)
Within the EU-Horizon Europe CoFund Project “ERDERA, European Rare Diseases Research Alliance”, a medical research…
New training sessions for CPMS 2.0!
Training Schedule: For Clinicians (CPMS 2.0 Web – CARE Interface) 1. Sign up Flow for…
Obituary: Prof Michel Fardeau
It is with immense sadness that we announce that Professor Michel Fardeau passed away on…
ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of…
8th ERN EURO-NMD Annual Meeting in Essen!
The time has come to start preparing the 2025 edition of the in-person EURO-NMD Annual…
Registry Onboarding has started
Registry Onboarding has started The ERN EURO-NMD Registry Hub intends to collect data from the…
ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"
What is an European Reference Network?
To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.
ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...
About EURO-NMD
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...
Relevant resources at a distance of a click
Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.