ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

We’ve published our first newsletter!

18 Aug 2017

We are delighted to announce that we have recently published our first newsletter which was sent out directly to over 200 people. We aim to publish ou …

supported by the

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit