Elizabeth Vroomelizabeth.vroom@worldduchenne.org
The World Duchenne Organization is a global umbrella organization of national patient organizations. We are dedicated to finding a cure and viable treatments for DMD, to promoting good standards of care, and to inform parents and people living with the condition around the globe.
‘There is a compelling need to ensure that wherever they are in the world, everyone diagnosed with Duchenne (and Becker) Muscular Dystrophy can benefit from a standard of care that is informed by the best practice of the best clinicians from all over the world, and is based upon the latest research.’
It is equally important that the information available to parents is contemporary, truthful and is based upon the latest research.
