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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
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Clinical Patient Management System (CPMS)
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Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Add a new article
Events
See all events
Add a new event
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
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CPMS representative
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CPMS representative
Members of CPMS representative
View group members
Alicia Alonso-Jimenez
Francesca Bianchi
Michela Catteruccia
Leonard Feasson
Jana Haberlova
Fernanda Fortunato
Stanislav Vohanka
Raul Juntas Morales
Sabrina Sacconi
Shahram Attarian
Kristina Kastreva
Philippe Kerschen
Susana Quijano-Roy
Yann Pereon
Cornelia Kornblum
Davide Pareyson
Laurent Magy
Kristl Claeys
Ulrike Schara-Schmidt
Wolfgang Müller-Felber
Susanne Müller
Antonio Toscano
Andrés Nascimento Osorio
Elena Pegoraro
Serenella Servidei
George Papadimas
Vincenzo Nigro
Massimilanio Filosto
Montserrat Olivé Plana
Monica Sciacco
Claudio Bruno
Tiziana Mongini
Miguel Pinto
Anneke van der Kooi
Daniele Velardo
Janneke Hoeijmakers
Jan Verschuuren
Dace Seile
Carmen Paradas
Thomas Sejersen
Simone Thiele
Robert Brunkhorst
Andreas Ziegler
Ans van der Ploeg
John Vissing
Cristina Domínguez-González
Carlos Casasnovas Pons
Mari Auranen
Aleksandra Nadaj-Pakleza
Guilhem Solé
Rachel Zeng
Angelo Schenone
Eustachio D'Errico
Letizia Mazzini
Rocco Liguori
Kristin Ørstavik
Tina Luize Cupane
Carol Fenech
Fernand Pauly
Fiore Manganelli
Jan De Bleecker
Johanna Palmio
Sofou Kalliopi
Kristin Ørstavik
Liis Väli
Lorenzo Maggi
Maria Judit Molnar
Marit Otto
Michael van Es
Nicolas Dubuisson
Sabine Rudnik-Schöneborn
Stefano Previtali
Stela Lefter
Vincenzo Silani
Christiaan Saris
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