EURO-NMD Neuromuscular Translational School
Leiden, Netherlands
The 7th Neuromuscular Translational Training School, organized by the ERN EURO-NMD and hosted by the Leiden University Medical Center (LUMC), focuses on therapy development from bench to bedside with a focus on neuromuscular disorders. The programme includes lectures about the current state of the art of the management of acquired and genetic neuromuscular diseases, the different steps of drug development and the tools needed for this (outcome measures, biomarkers etc). It also stresses how patients should play a role in each of these steps and teaches how to communicate research to patients and the general public during interactive workshop sessions.
EURO-NMD/FILNEMUS Summer School on Multidisciplinary Management of Neuromuscular Diseases
Marseille, France
The program arose from the need for a comprehensive approach addressing all stages of the clinical pathway for NMD patients, extending beyond the neuromuscular sphere. Its inclusive scope emphasizes the importance of multidisciplinary care for diverse neuromuscular conditions.
Participants will benefit from expert insights shared by a highly qualified Faculty, including clinicians representing various disciplines, psychologists, a speech and language expert, a dietitian, and patient representatives.
Particular attention will be given to the importance of using appropriate communication in sensitive situations, such as delivering a diagnosis, discussing palliative care, and to applying these skills in daily practice. A dedicated presentation and a hands-on session featuring patient representatives will provide direct insights into the patient journey.
Attendees will gain a comprehensive understanding of the multidisciplinary approach to NMD care, which will help them develop new perspectives and practical skills to enhance care in their respective teams and institutions.
European Paediatric Neurology Society
The EPNS has been organising training courses in paediatric neurology since 2003 specifically aiming at trainees but also at qualified paediatric neurologists who want to refresh their knowledge on certain topics. The aim is to cover most main topics in the syllabus over a three-year cycle and to promote contact between individuals in the speciality in different parts of Europe. The course has a highly interactive character and participants are encouraged to bring (difficult) cases to discuss.
European Academy of Neurology Spring School
The school covers a wide range of Neurological disorders. Participants can prepare their own cases for presentation and discussion, including video if appropriate and the patient has consented. Contributions to the optimal organisation of neurological care, neurological services and postgraduate education throughout Europe are presented.
ENMC
The Young Scientist program is to enable young researchers, clinicians and health care professionals to participate in an ENMC workshop related to their field of expertise, with the aim of giving them the opportunity to obtain state-of-the-art scientific information and networking opportunities, promoting the concept of the ENMC and making the field (more)
attractive for young professionals.
ENMC has a unique concept of facilitating and organizing workshops for experts in the field of neuromuscular conditions. Every month a group of 20 – 25 researchers, clinicians, patients and industry representatives, come together in a meeting venue in the Netherlands to exchange state-of-the-art knowledge of and experiences with a neuromuscular condition.
Amongst the main deliverables of these workshops are:
- a full publication in the journal of Neuromuscular Disorder to disseminate workshop outcomes to other researchers and clinicians working in the field
- a lay report on the ENMC website to inform patients and their families about what has been achieved at the workshop
- networking and collaboration
- define trial readiness and outcome measures
- consensus about guidelines for diagnosis, therapy and care