EURO-NMD/TREAT-NMD Neuromuscular Translational School
Leiden, Netherlands
The Neuromuscular Translational School organized by EURO-NMD and TREAT-NMD focuses on therapy development from bench to bedside with a focus on neuromuscular disorders. The Translational Summer School contains lectures about the current state of the art of the management of acquired and genetic neuromuscular diseases, the different steps of drug development and the tools needed for this (outcome measures, biomarkers etc). It also stresses how patients should play a role in each of these steps and teaches how to communicate research to patients and the general public during interactive workshop sessions.
EURO-NMD/FILNEMUS Summer School on Multidisciplinary Management of Neuromuscular Diseases
Marseille, France
The program will bring together experts from various disciplines to explore the latest advancements and best practices in the field of neuromuscular disease management. Through a series of workshops, lectures, and interactive sessions, participants will gain invaluable insights into the multidisciplinary approach to diagnosis, treatment, and care coordination. Understand the successful management of a multidisciplinary approach to the care of people with neuromuscular diseases, involving the implementation of strategies for seamless coordination, clear communication and close collaboration between various healthcare professionals.
“Advancing Personalized Medicine to the Clinic”
The 2024 Golden Helix Summer School that will be held in the island of Syros, Greece, the capital of the Cyclades islands in the Aegean archipelago. The 2024 Golden Helix Summer School will be organized in September 2024 and the theme of the Summer School will be “Advancing Personalized Medicine to the Clinic” and will revolve around the application of the most important disciplines of Genomic Medicine, such as Pharmacogenomics, Genome informatics, Public Health Pharmacogenomics, and economic evaluation in genome-guided interventions.
European Paediatric Neurology Society
The EPNS has been organising training courses in paediatric neurology since 2003 specifically aiming at trainees but also at qualified paediatric neurologists who want to refresh their knowledge on certain topics. The aim is to cover most main topics in the syllabus over a three-year cycle and to promote contact between individuals in the speciality in different parts of Europe. The course has a highly interactive character and participants are encouraged to bring (difficult) cases to discuss
European Academy of Neurology Spring School
The school covers a wide range of Neurological disorders. Participants can prepare their own cases for presentation and discussion, including video if appropriate and the patient has consented. Contributions to the optimal organisation of neurological care, neurological services and postgraduate education throughout Europe are presented.
ENMC
The Young Scientist program is to enable young researchers, clinicians and health care professionals to participate in an ENMC workshop related to their field of expertise, with the aim of giving them the opportunity to obtain state-of-the-art scientific information and networking opportunities, promoting the concept of the ENMC and making the field (more)
attractive for young professionals.
ENMC has a unique concept of facilitating and organizing workshops for experts in the field of neuromuscular conditions. Every month a group of 20 – 25 researchers, clinicians, patients and industry representatives, come together in a meeting venue in the Netherlands to exchange state-of-the-art knowledge of and experiences with a neuromuscular condition.
Amongst the main deliverables of these workshops are:
- a full publication in the journal of Neuromuscular Disorder to disseminate workshop outcomes to other researchers and clinicians working in the field
- a lay report on the ENMC website to inform patients and their families about what has been achieved at the workshop
- networking and collaboration
- define trial readiness and outcome measures
- consensus about guidelines for diagnosis, therapy and care