EURO-NMD is pleased to announce a dedicated 4-episode webinar series on Facioscapulohumeral Muscular Dystrophy (FSHD) this May. These engaging online sessions, which are open to all, will provide valuable insights into the latest developments and research on FSHD.
Each webinar will focus on a different topic related to FSHD featuring distinguished speakers from across Europe who will share their experience, research findings, and clinical insights.
The topics covered will span the pathophysiology, clinical management, genetic aspects, and emerging therapies for FSHD, offering a comprehensive overview of this complex disease. This series will provide participants with an opportunity to interact with leading professionals in the field, ask questions, and expand their understanding of FSHD from both scientific and patient perspectives.
These webinars are an excellent opportunity to stay informed and connected with the latest advancements in neuromuscular disease research!
Programme
📅 Thursday 8 May 2025 | 🕓 16:00–17:00 CEST
Topic: Genetic Diagnosis of FSHD
Speaker: Prof. Emiliano Giardina (University of Rome Tor Vergata, Italy)
Learn how FSHD is diagnosed through genetic testing, and what the results mean for patients and families.
📅 Thursday 15 May 2025 | 🕓 16:00–17:00 CEST
Topic: International Clinical Care Guidelines for FSHD
Speaker: Dr. Teresinha Evangelista (Institute of Myology & Pitié Salpêtrière Hospital – AP-HP, Paris, France)
Find out how FSHD is treated and managed in different countries, and what the latest care guidelines recommend.
📅 Thursday 22 May 2025 | 🕓 16:00–17:00 CEST
Topic: Pediatric FSHD – Diagnosis and care for children
Speaker: Prof. Tracey Willis (Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, UK)
This session will focus on how FSHD affects children, and how doctors can support young patients and their families.
📅 Wednesday 28 May 2025 | 🕓 16:00–17:00 CEST
Topic: Clinical Trial Readiness for FSHD
Speakers: Dr. Nicol Voermans & Ria de Haas, PhD (Radboud University Nijmegen Medical Centre, the Netherlands)
Discover how researchers are preparing for clinical trials in FSHD and what patients need to know to take part.