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16 June 2025: First CPMS Day – A New Collaborative Initiative

What Are CPMS Days?
CPMS Days are structured, theme-based case discussions hosted within the Clinical Patient Management System (CPMS). Unlike standard CPMS use, these sessions bring together clinicians, invited experts, and observers to discuss multiple cases in a focused, live session. They aim to promote learning, share cross-border expertise, and improve patient care. 

 

🎯 Objectives 

  • Facilitate cross-disciplinary discussions around a specific clinical theme 
  • Promote effective use of CPMS across the network 
  • Empower clinicians to present and learn from real cases 
  • Foster expert engagement and community collaboration 

 

👥 Who Can Participate? 

  • Case Presenters: Any ERN-affiliated clinician may propose a case, provided it is uploaded to CPMS and patient consent has been obtained. 
  • Experts: Invited to moderate and comment on selected themes 
  • Observers: Any CPMS-registered clinician may attend for educational purposes 

 

📅 First CPMS Day – 16 June 2025 

We are pleased to announce the first CPMS Day, scheduled for 16 June 2025, from 15:00 to 17:00 CET. 

  • Thematic focus: Mitochondrial myopathies 
  • Call for Cases: We are seeking two additional cases related to this topic. 

➡️ Clinicians interested in presenting a case are kindly requested to: 

  1. Upload their case to CPMS. 
  1. Complete the submission form through this link : Submission Form.  

If the link doesn’t work, copy and paste it directly into your browser:
https://docs.google.com/forms/d/e/1FAIpQLSflKVLvi3d2H5xEoNWuiDAT2c3–pmFGtGTS98MuuR98HLBgg/viewform?usp=header   

🧠 One or two experts will be invited to facilitate the discussion of the selected cases. 

Stay tuned — upcoming themes and dates for future CPMS Days will be announced soon. 

 

🔐 Practical Info 

  • A single CPMS video session will cover all case dsicussions 
  • All participants must be registered CPMS users 

 

💶 CPMS Reimbursement Scheme 

To support participation, ERN EURO-NMD has launched a Pilot Reimbursement Scheme under the current grant (EU4Health programme). 

Reimbursement Overview 

  • €200 per case, paid to the submitting HCP 
  • Applies only to cases presented during CPMS Days (not regular CPMS use) 
  • Case must be uploaded, reviewed, and closed with a final report 

Key Conditions 

  • Open to ERN EURO-NMD full members and affiliated partners 
  • One reimbursement per case 
  • HCP must sign a Cooperation Agreement with the EURO-NMD Coordinating Center (AP-HP) and submit an invoice 

Invoice Deadlines 

  • June 30, 2026: for 2025 and early 2026 cases 
  • September 1, 2027: final deadline for all submissions 

Only one consolidated invoice per HCP per deadline will be accepted.

📄 Download the CPMS Reimbursement Protocol (PDF)
📄 Download the Cooperation Agreement Template (Editable Word file) 

📞 Contact 

For further information, please contact:
Fernanda Fortunatofrtfnn@unife.it