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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
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Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Registry Onboarding Dashboard
My EURO-NMD
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Name
Institution
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B
Christine Barnerias
Assistance Publique-Hôpitaux de Paris, Hôpital Raymond Poincaré
France
Carla Baronchelli
Spedali Civili di Brescia
Italy
Andrea Barp
Opedale Niguarda di Milano (including Nemo Clinical Centre)
Italy
Silvia Barrias
Centro Hospitalar Universitario do Porto EPE (CHUP)
Portugal
Guillaume Bassez
Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpêtrière
France
Luis Bataller
Hospital UIP La Fe – Valencia
Spain
Matthias Baumann
Medizinische Universität Innsbruck
Austria
Josef Bednarik
Fakultní Nemocnice Brno
Czech Republic
Luca Bello
Azienda Ospedale – Università Padova
Italy
David Bendahan
Assistance Publique-Hôpitaux de Marseille, Hôpital La Timone
France
Emilien Bernard
CHU de St Etienne
France
Aline Bernassola
Centre Hospitalier de Luxembourg
Luxembourg