Mrs Katie Waller

Katie Waller is a registered paediatric nurse with significant experience in the field of clinical research. As a research nurse, she has acted as lead nurse on several academic and commercial clinical trials with patients with neuromuscular diseases including Duchenne Muscular Dystrophy, FSHD and Becker Muscular Dystrophy, and she has had experience in providing clinical care to patients with Spinal Muscular Atrophy, Limb Girdle Muscular Dystrophies and other rare neuromuscular diseases. Her joint passion for clinical research and the importance of patient engagement has led to her taking on the role of Science and Patient Engagement Officer for the Lily Foundation. The Lily Foundation is the UK’s leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe. The mission of the Lily Foundation is to improve the lives of people affected by mitochondrial diseases, while working towards a future where mitochondrial diseases can be effectively treated or cured. The Lily Foundation are also represented on the Board of IMP (International Mito Patients) and are proud to participate in many other European and global collaborations.