Dr. Filippo Genovese

Filippo Genovese is the President of the European CMT Federation and Chief Scientific Officer of ACMT-Rete per la malattia di Charcot-Marie-Tooth OdV, an Italian PAG of CMT patients and a founder member of the Federation. He has a scientific background (Ph.D. in Pharmaceutical Sciences, working in the field of Mass Spectrometry/Proteomics) and he lends a hand to both ACMT-Rete and ECMTF with informatics too (website, social media, communication). He suffers from Charcot-Marie-Tooth 1X, but he does not live the relationship with the disease as a condemnation but as a part of him. It was not easy to metabolize it and it is not easy at certain times when the difficulties related to the disease add up to everything else. He tries to convey this energy and turn it into a stimulus to advocate for a better quality of life for people with a neuromuscular condition.