Emma Del-Rey

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Emma Del-Rey has a daughter who was diagnosed with Mitochondrial Disease. Since 2008, she is the Vice-Chair of AMMI, a French Mitochondrial Disease Organisation. She organises meetings for the regional delegate, provides information to hospitals and families, and organises events to raise funds for scientific projects and help affected families. She has also been a member of the Board of International Mito Patients (IMP) since 2011, and is in charge of an international project about pain for mitochondrial patients.

Woman Profile Photo

Organisation

L’AMMi – Association contre les Maladies Mitochondriales

6,impasse Jacques Prévert
31470 Sainte Foy de Perolieres

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European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“