Dear EURO-NMD Healthcare Providers, We are pleased to invite you to participate in the survey “Current screening and treatment to optimize bone strength in neuromuscular disorders: a survey among medical specialists”. This is part of the preparation fo …

Through its annual calls for proposals, each year AFM-Telethon supports new research projects in France and abroad, particularly for young researchers. After assessment by its Scientific advisory board, the Association finances the most relevant or mos …

The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State re …

Primary mitochondrial disorders (PMD) continue to be without any curative or evidence-based therapies, but in many cases, clinicians use one or more vitamins or cofactors to support the patient’s mitochondrial function/metabolism and thereby help to al …

In partnership with ERN-RND for Rare Neurological Diseases & European Academy of Neurology, we are running a series of webinars every Thursday in January. This month’s topic is rare muscle diseases. Each webinar will last approximately 1 hour with …