Author: EAM

Requesting Letters of Intent (LOI) for the Individual Investigator Research Grant Awards

The RYR-1 Foundation is Requesting Letters of Intent (LOI) for the Individual Investigator Research Grant Awards Deadline: May 18, 2024 In celebration of Rare Disease Day, The RYR-1 Foundation is excited to announce that Letters of Intent (LOIs) for th …

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Gene Therapy webinar series

General information We’re happy to announce our upcoming webinar series on Gene Therapy co-organized by EURO-NMD, ERN-RND, for rare neurological diseases, ERN EpiCARE, for rare and complex epilepsies  and European Academy of Neurology (EAN), where we’l …

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7th ERN EURO-NMD Annual Meeting presentations

Our annual meeting slides, focused on advancements in the neuromuscular field, are now live. Dive into the latest research findings and future plans. Access the slides and let’s keep pushing boundaries in neuromuscular science! Click directly on the se …

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Post-doctoral position in Therapy Development for Rare Diseases in Barcelona!

You will join our laboratory of Translational Research in Neuromuscular Diseases at the Institut de Recerca Sant Joan de Déu-Hospital Sant Joan de Déu Barcelona (https://www.irsjd.org/es/investigacion/5/investigacion-aplicada-en-enfermedades-neuromuscu …

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EURO-NMD Survey: Bone strength in neuromuscular disorders

Dear EURO-NMD Healthcare Providers, We are pleased to invite you to participate in the survey “Current screening and treatment to optimize bone strength in neuromuscular disorders: a survey among medical specialists”. This is part of the preparation fo …

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The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern