Author: EAM

The brand new European Society for Mitochondrial Research and Medicine (E-Mit)

We are delighted to introduce to you the European Society for Mitochondrial Research and Medicine (E-Mit) reachable at https://www.e-mit.org/. The aim of the society is to promote research in mitochondrial biology and medicine in Europe, and to be a re …

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EJPRD : New free MOOC “Introduction to translational research for Rare Diseases”

On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week course from the European Joint Programme on Rare Diseases, you’ll explore the therapeutic development process from the …

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Getting involved in the new multidisciplinary care work group at ERN EURO-NMD

Our new full member from Norway is currently building a new work group on multidisciplinary care and looking for members from across the network. You are a committed nurse, speech therapist, dietitian, social worker or physiotherapist ?  You would like …

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The new Phenopackets ISO standard facilitates data sharing

The International Organization for Standardization (ISO) has published Phenopackets, the first clear computational way to responsibly share individual patient traits, removing a major barrier to research on disease diagnosis, treatment, and mechanism d …

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Brescia Workshop on Neuromuscular Diseases

On 22-24 September 2022, at the Centro Congressi Paolo VI took place the Brescia Workshop on Neuromuscular Diseases. This event endorsed by the ERN EURO-NMD was organised by Prof. Massimiliano Filosto under the patronage of several academic and clinica …

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The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern