Jean-Phillipe Plançonjean-philippe.plancon@epodin.org
The voice of European patients living with rare immune-mediated peripheral neuropathies
Epodin strives to strengthen the patient’s voice to give each European citizen living with a rare immune-mediated peripheral neuropathy the opportunity to reduce the burden and inequities due to the disease. We work with all European regular patient’s organizations to ensure that all patients can have a voice to improve their lives with the disease.
Epodin works to help the improvement of health standards,
social & medical policies both at national and international levels.
We collaborate with European institutions, including European Reference Networks and medical societies, to achieve the highest standards of diagnosis, treatment and care for rare immune-mediated peripheral neuropathies for patients in each European country.
We collaborate with European institutions, including European Reference Networks and medical societies, to achieve the highest standards of diagnosis, treatment and care for rare immune-mediated peripheral neuropathies for patients in each European country.
EPODIN works to ensure that European public health policies take into account the specific needs of people affected by dysimmune and inflammatory neuropathies (DINs : CIDP, MMN, LSS, Anti-MAG, GBS, MFS…). We are fully committed working with Member States, MEPs and European Commission in the interest of patients.