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A new website is coming!

We are delighted to introduce our newly redesigned website, tailored specifically for the neuromuscular disease community. Our aim is to provide a comprehensive resource for patients, families, healthcare professionals, and researchers, making it easier to access critical information, support, and the latest developments in the field.

This development is underway and will be up and running in no time! Some functions no longer work on the website as we are currently migrating data.
Stay tuned, new things are coming…

What’s New?

  • Modern and Intuitive Design
    • Our refreshed look, featuring streamlined navigation and enhanced functionality, ensures you can quickly find the information you need.
  • Mobile-Friendly Interface
    • Access our resources on any device. Our website adapts seamlessly to desktops, tablets, and smartphones, ensuring a consistent experience.
  • Advanced Search Functionality
    • Quickly find the information you need with our powerful search tool, featuring filters and sorting options to help you navigate our extensive database of articles, studies, and resources.
  • New Private Space
    • Introducing a dedicated private space where you can save your favorite articles, access personalized content, and manage your interactions with our services. This secure area provides a safe environment for storing sensitive information and resources tailored to your specific needs.
  • Events Calendar
    • Stay up-to-date with upcoming webinars, conferences, and support group meetings. Our events calendar helps you keep track of opportunities to learn and connect with the community.
  • Research and Clinical Trials
    • Stay informed about the latest research and clinical trials. Our dedicated section provides updates on ongoing studies and how you can participate or contribute.