ERDERA will mark its 1st anniversary with a stimulating online event open to the entire rare disease community. Leading experts in the field of neurology, neurometabolic diseases and patient advocacy will take the floor next 30 October, from 09:00 to 11:20 CET, bringing both scientific and lived experience to the table.
This online event is an integral feature of ERDERA’s 2nd General Assembly. Besides listening to powerful keynote speeches, participants will learn firsthand how the partnership is transforming the future of rare disease research through bold, data-driven, collaborative innovation.
ERDERA scientific coordinator, Daria Julkowska (INSERM) will also share first-hand insights into ERDERA’s first-year achievements, as the partnership moves into its second year towards a shared vision of a stronger European rare disease research ecosystem.
Agenda
- 09:00 – 09:10 Welcome Speeches
Yvo Roos, UMC Board Member, Amsterdam, The Netherlands & Daria Julkowska, ERDERA Coordinator, INSERM, Paris, France
- 09:10 – 10:00 Keynote speech (Remote)
Fanny Mochel, Director of the Reference Center for Neurometabolic Diseases – La Pitié-Salpêtrière Hospital, APHP-Sorbonne University, Paris, France
- 10:00 – 10:50 Keynote Speech
Bojana Mirosavljevic, Founder of Zivot-Life Association, Belgrade, Serbia
- 10:50 – 11:20 One year of ERDERA achievements
Daria Julkowska, ERDERA Coordinator, INSERM, Paris, France
Register now
Don’t miss the chance to be part of an inspiring occasion at the ERDERA Open Session on 30 October 2025, from 09:00 to 11:20 CET.
The session is free to attend, but registration is required. You can register to attend the open session here!