The pre-registration for the 8th Annual Meeting of the ERN EURO-NMD is now open to the public! Please note that registration is only valid after receiving confirmation email from us.
⚠️ DEADLINE: 21st February, 2025 at 18:00 CET
The ERN EURO-NMD Coordination team is pleased to announce that the 8th ERN EURO-NMD Annual meeting will take place on 5-6-7 March 2025 at the Essen University Hospital in Germany.
This in-person event will focus on two key themes: Newborn Screening and Transition, addressing critical advancements in early detection and the seamless transition of care from pediatric to adult services.
Why these themes?
- Newborn Screening: Early detection of rare neuromuscular diseases is a game-changer. We’ll explore advancements in screening practices and discuss how early intervention can significantly impact outcomes for patients and families.
- Transition: Addressing the challenges of transitioning young patients from pediatric to adult healthcare services is a critical focus. Our sessions will highlight into best practices for facilitating effective transitions while maintaining high standards of care and support.
This annual gathering is not only about learning and sharing but also about building a strong, connected community that works collaboratively to improve the quality of life for individuals affected by these conditions.
PROGRAMME
Please click here to see the preliminary programme.
Please note that while the preliminary program is under development, some details may be subject to change as we finalize the agenda.
PRE-REGISTRATION
We are pleased to announce that pre-registration for the 8th Annual Meeting of the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) is now open to the public!
1. Please note that your registration will not be considered as valid until you receive an email from the EURO-NMD coordination team confirming it.
2. if you have received a personal invitation to the meeting, please use the registration link in the email you received. The registration form linked below is for anyone who wants to attend the annual meeting but has not received a personal invitation.
For any question, request or information regarding the Annual meeting, please send an email to annualmeeting@ern-euro-nmd.eu
We are looking forward to seeing you in Essen!