Emma Del-Rey

Emma Del-Rey is the president of the AMMi association (French association against mitochondrial diseases). It is a national organisation and represents French patients. She has been involved in mitochondrial disease since her daughter was diagnosed 16 years ago. She’s 19 years old today. She is at IMP board (international mito-patient), in the Genomit working group for the patient database, at Eurordis, rare disease alliance and in contact with the reference centres in France.