Marie-Christine Ouillade

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Marie-Christine Ouillade has a daughter who has been diagnosed with Spinal Muscular Atrophy type II. Marie-Christine Ouillade has been actively involved in the activities of the AFM-Téléthon since 1996, and became a member of its Board of Directors in 2006, as well as a member of the Board of Directors of Genethon since 2007. She is also a member of the TREAT-NMD Project Ethics Council since 2007, a Board Member of the International Rare Diseases Research Consortium since 2011, and the former President of SMA Europe, currently chair of the steering committee of SMA NBS Alliance, requesting neonatal screening for SMA in Europe.

Marie-Christine's Network Involvement

Marie-Christine is involved in these different areas of the network...

Organisation

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern