Marie-Christine Ouillade

Marie-Christine Ouillade has a daughter who has been diagnosed with Spinal Muscular Atrophy type II. Marie-Christine Ouillade has been actively involved in the activities of the AFM-Téléthon since 1996, and became a member of its Board of Directors in 2006, as well as a member of the Board of Directors of Genethon since 2007. She is also a member of the TREAT-NMD Project Ethics Council since 2007, a Board Member of the International Rare Diseases Research Consortium since 2011, and the former President of SMA Europe, currently chair of the steering committee of SMA NBS Alliance, requesting neonatal screening for SMA in Europe.