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World Duchenne Organization, together with the Duchenne Data Foundation, started their Duchenne Emergency & Capacity Building Program

22 February 2021

  • The Duchenne Emergency & Capacity Building Program was set up by the World Duchenne Organization and Duchenne Data Foundation.
  • It aims to support local communities through strategic global capacity building.
  • It was first put into action to deliver medical equipment to Lebanon after the Beirut city port explosion.
Aida Adra, founder of the Lebanese DMD patient organization Land for Hope was overjoyed. “It was so smooth to handle the donation, and we were so excited to see what we have for our kids, like Christmas gifts” 
Click here to access the full website article (link) or see attached official press release.
For more information about the program, please contact nicoletta.madia@worldduchenne.org
For more information and photos, please contact me on suzieann.bakker@worldduchenne.org
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The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“