1 April 2022

The goal of the workshops is to train researchers and clinicians affiliated to ERN-Full Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops will be aiming to provide a cross-ERN added value. 

The workshops will be delivered as two-day events. Topics can be proposed by clinicians/investigators affiliated to ERN-institutions or EJP RD beneficiaries. 


Topics will be selected taking into consideration several elements such as: 

  • Addressing cross-cutting issues relevant for ERNs 
  • Multidisciplinarytopics
  • Fostering collaboration (within and between ERNs) 
  • No overlap with other EJP RD training activities 
  • Relevance of the topic for the ERN(s) 
  • Benefitsforthe RD community
  • Appropriate training methodology


The workshops selected for funding will be attended only by individuals affiliated to ERN institutions. Participants will be selected by the coordinator of the ERN managing institution and the workshop organizer based on pre-defined criteria. The costs for the workshop organization will be covered up to a limit of € 25.000. These include the costs and fees typically charged by the event venue, administrative, audio-visual and IT facilities essential for the workshop, catering, travel and accommodation expenses of workshops participants and invited speakers (if envisaged). 

Applicants/Application profile: 

The applicant submitting workshop topics must fulfil one of the following conditions: 

  • Affiliated to any EJP RD beneficiary institution. The list of EJP RD beneficiary organizations can be found here  
  • Affiliated to an ERN Full Member. The list of full ERN members per country and per network can be found here 
  • Affiliated to an ERN Affiliated Partner institution at the time when the application is submitted, as well as during the period of the execution of the workshop. 


The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern