5 March 2021

Progress has been made with the EURO-NMD Registry Hub project, as the team is working on the FAIRification of the registry. This means that it should be possible for health records written in different languages, formats and stored in different registries to be combined, achieving interoperability.

The project will demonstrate how the EURO-NMD Registry Hub can be interoperable with four existing patient registries: CRAMP, DMScope, Duchenne Data Platform and SMArtCARE. The FAIRification process of the Duchenne Data Platform started in September 2020 with a completion date set to December 2021.

For more complete information click the link and read the ERN Euro-NMD Registry Hub newsletter.