29 April 2022
We are conducting a survey in order to get a better understanding on the knowledge and use of Patient-Reported Outcome Measures (PROMs) by the healthcare professionals participating in the ERN EURO-NMD network of healthcare providers (Full Members and Affiliated Partners). We will use the survey results to inform the selection of appropriate PROMs instruments for inclusion in the EURO-NMD registry. The EURO-NMD Registry (https://registry.ern-euro-nmd.eu) is the platform that has been built to collect data from patients treated within the EURO- NMD healthcare providers to facilitate clinical and research activity and assist in monitoring the quality of care and patient outcomes.
If you are an Healthcare professional belonging to one of the ERN EURO- NMD centers, we kindly request you to answer this survey by clicking on the link below and to disseminate the survey among your colleagues. It will not take you more than 10 minutes to complete.
Thank you for devoting your time and providing input.