28 October 2021

The ERN-transversal Working Group on Pregnancy and Family Planning in rare and complex diseases is currently organising an ERN-wide survey. The purpose of this survey is to recognize the issues and good practices related to pregnancy and family planning in rare and complex diseases in ERN centers.

The results of this survey will be elaborated and further discussed in a dedicated workshop in order to plan further actions to address unmet needs and to share good practices.

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern