Information regarding the paediatric & adult Neuromuscular COVID-19 Database, to monitor and report on outcomes of “Coronavirus Disease 2019” (COVID-19) occurring in patients with Neuromuscular Diseases. Guidelines and how to access the database is available here.
The International Neuromuscular COVID-19 Database is a paediatric and adult database to monitor and report on outcomes of “Coronavirus Disease 2019” (COVID-19) occurring in patients with Neuromuscular Diseases. There is an urgent need to understand outcomes of patients who acquire “severe acute respiratory syndrome coronavirus 2” (SARS-CoV‐2) infection and are receiving immunosuppressants and/or have disease features (e.g. cardiac or respiratory involvement) that may affect the outcome of COVID-19. This will help guide neuromuscular specialists and other clinicians such as specialist nurses and allied health professionals in advising and caring for their patients.
To report a case of COVID-19 to the International Neuromuscular COVID-19 Database CLICK HERE
Please click the link here to view the list of survey questions
Find out more about the University College London’s database from the UCL website.