Ria Broekgaarden is a representativeof Vereniging Spierziekten Nederland (VSN), a Dutch neuromuscular patient organisation. She coordinates diagnostical bound groups and is a project leader for SMA, Pompe Disease and Duchenne Muscular Dystrophy.She is also a Founder, Board Member and adviser of the International Pompe Association, a former FSHD Board Member and Founder of FSHD Europe. Currently, she serves as a Board Member of SMA Europe. She is a former ENMC Board Member and President. Ria Broekgaarden has been involved in TREAT-NMD. She has experience with EU projects and drug development, from first development to availability.