Heike graduated in 1989 with a Master’s degree in Linguistics and Latin Literature at the Johann Wolfgang Goethe Universität in Frankfurt, Germany. After leading the Marketing Department of Air France in Germany for many years, she moved to Paris in 1998, and started working in the Key Account departments of international Telecommunication and Insurance companies. Being a mum, she joined the Institute of Myology in 2011 as part-time assistant of the Medical and Scientific Director, Pr. Thomas Voit, where she discovered the field of Rare Diseases. She was thrilled to see patients, clinicians, researchers and engineers work hand in hand to push boundaries. In 2019, when Teresinha Evangelista brought the ERN Euro-NMD to Paris, she felt honored to become one of the Euro-NMD Project Managers together with Carla d’Angelo. Heike takes care of budget, planning and monitoring, reporting, mobility exchanges, bursaries, board meetings, congresses, and InterERN activities.