Diana van der Meij-Kim has a son who was diagnosed with FSHD at the age of 10. She subsequently took an active position in promoting the research for FSHD and within a year she became a member of the FSHD working group of the Dutch patient organisation VSN and a Board Member of the Dutch FSHD Foundation.
As a member of Dutch patient organisations, Diana van der Meij-Kim joined FSHD Europe and was elected its President in 2016.
Diana's Network Involvement
Diana is involved in these different areas of the network...Muscle Diseases
Organisation
FSHD Europe
The ERNs are co-funded by the European Union (Health Programme and CEF)
“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“
