Diana van der Meij-Kim

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Diana van der Meij-Kim has a son who was diagnosed with FSHD at the age of 10. She subsequently took an active position in promoting the research for FSHD and within a year she became a member of the FSHD working group of the Dutch patient organisation VSN and a Board Member of the Dutch FSHD Foundation.

As a member of Dutch patient organisations, Diana van der Meij-Kim joined FSHD Europe and was elected its President in 2016.

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Organisation

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EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern