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Euro-NMD Board Members Meeting 4th June 2021 - programme and working groups
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Dear members of the Board, Affiliated Partners, Executive Committee and Patient Advisory Board, You are all very welcome, on Friday June 4th, 2021, online, for…
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ERN Euro-NMD Exchange Programme 2021-2022
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Following the ERN’s motto: “knowledge travels, not the patient” we are pleased to annonce that the EU is funding an Exchange Training Programme. Through this programme your travel costs will be fincanced, and you will receive a daily allowance of 200€ per working day for your accomodation, travel insurance and subsistance costs. This Exchange Programme…
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EAN/PNS Guideline on diagnosis and treatment of chronic inflammatory demyelinating polyradiculoneuropathy - open for members comment
In order to ensure high quality of European Academy of Neurology guidelines, EAN’s Guideline Production Group publishes draft guidelines on the EAN website for 15-days member comment period. The purpose of making the guideline available to EAN members prior to publication, is to solicit feedback to the guideline task force which have developed the…
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Events
Due to the ongoing coronavirus situation an increasing number of events are currently being postponed or cancelled.
We will keep the event information shown here as up to date as possible however, we strongly recommend that you check directly with any event that you are planning to attend to ensure it is indeed…
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WHAT'S NEW IN FSHD?
This webinar is about what is new in FSHD. The field of FSHD is rapidly evolving. The clinical and genetic variability of this disease become more undestandable together with FSHD pathophysiological mechanism. The development of new therapies for this disease is rapidly evolving. Clinical trial readiness is the core issue that need to be addressed. The experts will give…
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ProDGNE Kick-off Webinar 3rd June 2021, 6pm CET
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GNE Myopathy is a rare genetic (autosomal recessive) disorder that causes progressive skeletal muscle atrophy and weakness. Previous names include hereditary inclusion body myopathy (HIBM), inclusion body myopathy type 2 (IBM2) or Nonaka myopathy. GNE myopathy results from mutations in a gene called GNE, which is responsible for a step in the production of a sugar…
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Academyo
ACADEMYO is the digital version of the renowned Summer School of Myology that has been running yearly at the Institut de Myologie (Paris, France), since 1998. The course is made of forty pre-recorded lectures accessible on demand and three half-day interactive sessions broadcast live on Monday July 5th, Wednesday July 7th and Friday July 9th,…
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July's Summer School Webinar Series
The euro nmd webinar series of July will be devoted to some of the lectures given during the 2021 translational summer school and involving a remarkable list of experts. Our programme includes: July 2021 Thu Jul 1 – 16:00-17:00 CET
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